by The Smallest Baby In The World, How To Change When She Is 3 Years Old Now
The Woodlans – Abigail Lee was born July 23, 2019 at 1:55 p.m. She came into this world at two pounds, nine ounces, and currently at seven months of age, weighs just five pounds, five ounces. Abigail has MOPD type II, also known as primordial ᴅᴡᴀʀFɪsᴍ. The disorder is so rare that only 100 cases are estimated worldwide.
Now her mother is sharing her condition whe she is 3 years old. ” Life has been c.r.a.z.y busy, life keeps moving as much as you tell it to slow down! We saw the doctors in Delaware, I can NOT praise them enough!! So caring, understand and insightful. We have a better laid out plan for her, her hips and her vocal cords as well as some added on testing we needed to get done.
She turned 3, she is now 10 POUNDS, she is 23 inches tall, she is in the process of getting her IEP (mommy is very nervous for that), she is learning more and more everyday and trying to keep up with her sister. Overall, we are loving life and taking it one step at a time with these new adjustments with our current team. Also, making sure we soak up all the fun moments with both Abigail and Samantha.
Every 5-6 months we see the orthopedic to see how her hips are doing and if they are progressing in anyway. 2 months ago when we went, we got news that they were getting way worse. We have been dealing with appointments every week sense then with her orthopedic and therapist to determine our next move.
Her hips have been ᴅɪsʟᴏᴄᴀᴛᴇᴅ since birth. Since then they have not attempted to go back in there sockets. We hoped we would be able to wait for drastic measures but now looking at them, the hip sockets are completely flat which has made the balls of the hips go into the pelvis trying to make their own socket in her pelvis. The ball of her hip is completely cartilage so it is rubbing the cartilage off so when that happens it will be bone on bone and that would be extremely ᴘᴀɪɴFᴜʟ. The only hope we have now, is reconstruction hip sᴜʀɢᴇʀʏ. This is the best option for the best quality of life for her.
Her sᴜʀɢᴇʀʏ will be November 2nd at 8:00am we will have to be there at 5:30am for check in. They will be doing one at a time because her body can not withstand two major sᴜʀɢᴇʀɪᴇs at one time nor being in intubation for that long. The second one will take place 4-6 weeks after her first sᴜʀɢᴇʀʏ.
Please keep us in your prayers/thoughts/vibes whatever it is you believe in. And thank you all for always supporting us in the best way.”
