January 28, 2023

Mum’s ᴅᴇᴠᴀsᴛᴀᴛɪᴏɴ At Being Told To Plan Her Twins’ Fᴜɴᴇʀᴀʟ Before they Were Even Born

Mum’s ᴅᴇᴠᴀsᴛᴀᴛɪᴏɴ At Being Told To Plan Her Twins’ Fᴜɴᴇʀᴀʟ Before they Were Even Born

Claire Mawforth, 36, had been told by doctors her daughters would not survive birth and had even started planning their Fᴜɴᴇʀᴀʟ before they were born.

A mum told to plan a Fᴜɴᴇʀᴀʟ for her baby twins before they were even born is now preparing to send them to nursery. “Warrior” sisters Hope and Amelia Mawforth were born with ʙʀᴏᴋᴇn bones because of a rare ᴄᴏɴᴅɪᴛɪᴏɴ ᴀɴᴅ ʜᴀᴅ to Fɪɢʜᴛ Fᴏʀ sᴜʀᴠɪᴠᴀʟ since birth. But now the pair are able to walk for a short period of time and are making huge milestones.  Claire, who also has daughter Grace and lives with husband Phil in Hull, calls her twins “Warrior Twincesses” after being born with the ᴏᴅᴅs sᴛᴀᴄᴋᴇᴅ ᴀɢᴀɪɴst them at Hull Royal Infirmary.

Before they were born, the twins had already been ᴅɪᴀɢɴᴏsᴇᴅ with type three severe ᴏsᴛᴇᴏɢᴇɴᴇsɪs ɪᴍᴘᴇʀFᴇᴄᴛᴀ (OI) – better known as ʙʀɪᴛᴛʟᴇ ʙᴏɴᴇ ᴅɪsᴇᴀsᴇ. As well as ʙʀᴇᴀᴋɪɴɢ ᴛʜᴇɪʀ Fᴇᴍᴜʀ ᴀɴᴅ ᴛɪʙɪᴀ ʙᴏɴᴇs while in the womb, they were born with ʙʀᴏᴋᴇn ribs. And in the first week six weeks of her life, Hope ʙʀᴏᴋᴇ both her arms. Miraculously, Hope and Amelia carried on developing and Claire has shared the good news that her now three-year-old daughters are getting ready to start nursery – something she never believed was possible.

Claire said: “Hope and Amelia are doing well considering their ᴅɪsᴀʙɪʟɪᴛʏ. They can’t do the same as other children of the same age as they get ᴛɪʀᴇᴅ easily and there bones become sore and ᴛɪʀᴇᴅ. In their brains they still want to carry on but their body doesn’t let them. They have had numerous ʙʀᴏᴋᴇn bones over the past years from simple things like jerking there arm or missing a object.”

Despite being overjoyed by their progress, Claire still worries how the pair will cope being around other children.

“They have both been for taster sessions at nursery and seem excited but nervous to start. The children who will be along side the girls are obviously a lot bigger so I feel like the girls do get a bit anxious about this. They haven’t really been around many children their age due to Cᴏᴠɪᴅ ʀᴇsᴛʀɪᴄᴛɪᴏɴs, but I’m hoping the nursery setting will allow them to gain friendships with their peers.”she said.

Their battle continues on every day, but the family are overjoyed that they have their girls around and they are showing progress each day. They recently had ʀᴏᴅᴅɪɴɢ sᴜʀɢᴇʀʏ ᴏɴ ᴛʜᴇɪʀ Fᴇᴍᴜʀs ᴀɴᴅ ᴛɪʙɪᴀᴇ ᴡʜɪᴄʜ ᴄᴏɴsɪsᴛs of three bones being ʙʀᴏᴋᴇn and a metal telescopic rod inserted inside the bone to straighten them and make them stronger.

“Although they are unable to walk for long before they start aching. They have also just received there first wheelchairs for when they are too ᴛɪʀᴇᴅ and aching to remain independent.

Claire wants to share her experiences with other families who are going through a similar situation, and aims to raise as much money as possible for The Brittle Bone Society. The mum-of-three is taking on a challenge with a group of family, friends, and colleagues as they take on England’s highest mountain – Scafell Pike.

“Raising funds for a charity that has offered so much support since birth of the twins is close to my heart and I’ll be proud to say I’ve accomplished this challenge.”    Claire said

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