Mum Whose Son Was Born With ɴᴏ Legs, One Arm And Webbed Hand Says ‘He’s Perfect’ The Touching Story Behind That
Rosie Higgs discovered at her 20-week scan that her unborn son was likely to have Aᴍɴɪᴏᴛɪᴄ Bᴀɴᴅ Sʏɴᴅʀᴏᴍᴇ ᴡʜᴇʀᴇ sᴛʀᴀɴᴅs ɪɴ ᴛʜᴇ ᴡᴏᴍʙ ᴇɴᴛᴀɴɢʟᴇ ᴀ ʙᴀʙʏ’s ʟɪᴍʙs ᴀɴᴅ ɪɴʜɪʙɪᴛ proper growth
When Rosie Higgs was told her son would be born with ɴᴏ legs and just one arm with a webbed hand she never doubted she would ᴋᴇᴇᴘ ʜɪᴍ. And as her “perfect” 11-month-old Henry ɢᴜʀɢʟᴇs ᴡɪᴛʜ ᴅᴇʟɪɢʜᴛ playing with his rubber bath toys she kɴᴏws it is the “best decision” she has ever made.
Rosie, 29, discovered at her 20-week scan that her unborn son was likely to have Aᴍɴɪᴏᴛɪᴄ Bᴀɴᴅ Sʏɴᴅʀᴏᴍᴇ – where sᴛʀᴀɴᴅs ɪɴ ᴛʜᴇ ᴡᴏᴍʙ ᴇɴᴛᴀɴɢʟᴇ ᴀ ʙᴀʙʏ’s ʟɪᴍʙs ᴀɴᴅ ɪɴʜɪʙɪᴛ ᴘʀᴏᴘᴇʀ growth. Given the huge physical challenges he would face, family and friends questioned whether she should ᴛᴇʀᴍɪɴᴀᴛᴇ the pregnancy. But mum-of-three Rosie, of Harrow, ɴᴏrth London, was sure.
The special needs school care ¬assistant said: “I was keeping him – ɴᴏ matter what I was advised.
“People ᴡᴀʀɴᴇᴅ he might have a ᴛʀɪᴄᴋʏ ʟɪFᴇ Fᴜʟʟ ᴏF ʟɪᴍɪᴛᴀᴛɪᴏɴs but I didn’t listen. Even though Henry doesn’t have all ʜɪs ʟɪᴍʙs, I’ᴍ ¬ᴅᴇᴛᴇʀᴍɪɴᴇᴅ ʜᴇ ᴡɪʟʟ ʜᴀᴠᴇ ᴀ Fᴀɴᴛᴀsᴛɪᴄ ᴀɴᴅ Fᴜʟʟ ʟɪFᴇ ᴡɪᴛʜᴏᴜᴛ ʟɪᴍɪᴛᴀᴛɪᴏɴs.”she said
Her partner Peter, 39, agreed with her. She said: “Peter and I decided Henry ᴅᴇsᴇʀᴠᴇᴅ ᴀ ᴄʜᴀɴᴄᴇ. Pᴇᴛᴇʀ ᴡᴀs sᴏ sᴜᴘᴘᴏʀᴛɪᴠᴇ and we made every decision together. We knew we would never ¬ᴛᴇʀᴍɪɴᴀᴛᴇ the pregnancy. Working with special needs children every day, I knew Henry would be OK. It was scary at times being pregnant. I had sᴄᴀɴs every four weeks – they kept a close eye.”
Henry was born by ᴄᴀᴇsᴀʀᴇᴀɴ ᴡᴇɪɢʜɪɴɢ ᴀ ʜᴇᴀʟᴛʜʏ 8lb 2oz. She said: “The midwives asked if I wanted to see him straight away as I was nervous. Sᴄᴀɴs can only tell you so much. It was such a ʙᴜɪʟᴅ ᴜᴘ ᴀɴᴅ ᴀ ᴡᴏʀʀʏ when he first came out I didn’t kɴᴏw what to expect.”
Midwives took Henry to one side and Peter, an Emirates facilities seating supervisor, saw him first.
Rosie said: “As Peter passed me my little boy I fell in love.”
When Rosie took the tot home sister Alice, 13, and brother Michael, seven, didn’t bat an eyelid at his ᴘʜʏsɪᴄᴀʟ ᴅɪFFᴇʀᴇɴᴄᴇs. Henry loves playing with his older brother and sister.
Rosie said: “Alice ᴛʀᴇᴀᴛs him like her own baby. She loves him so much. She’s his second mum. Regular baby clothing is very difficult as you have to roll everything up or it ʟᴏᴏᴋs ʀɪᴅɪᴄᴜʟᴏᴜs. Mum likes to ᴄʀᴏᴄʜᴇᴛ ᴀɴᴅ ᴋɴɪᴛs sᴏ sʜᴇ ᴍᴀᴋᴇs ʜɪᴍ ᴏᴜᴛFɪᴛs.”
Henry had sᴜʀɢᴇʀʏ at Great Ormond Street to separate his webbed hand.
Rosie said: “He’s can pick things up ᴡɪᴛʜᴏᴜᴛ any problems. He’s progressing really well and is happy. He’s ʙᴀʙʙʟɪɴɢ all the time like he’s talking to you and replying. He wakes me in the morning with his chatter.”
Peter and Rosie hope their experience will make adults realise it is all right for their children to be different.
Rosie said: “I kɴᴏw he will always be a little bit ᴅɪffᴇʀᴇɴᴛ but we take it day by day and I kɴᴏw he’ll be able to cope.”
The family has been supported by Reach, a charity which helps kids with upper limb differences lead full lives.
She said: “Thanks to the charity I’ve been in contact with loads of parents in similar positions. They’ve really helped me get through it. Henry is such a happy chap and doesn’t let his ᴅɪsᴀʙɪʟɪᴛʏ hold him ʙᴀᴄᴋ ɪɴ ᴀɴʏ ᴡᴀʏ.”
Rosie added: “He might ɴᴏt have all of his arms and legs, but he’s absolutely -perfect to me. What do you think? Have your say in comments below