January 30, 2023

Mom Share Her Life With Two Daughter Have ᴀʟʙɪɴɪsᴍ 

Mom Share Her Life With Two Daughter Have ᴀʟʙɪɴɪsᴍ 

“My husband and I were high school sweethearts who had just graduated together the year before. Chayd and i,  We were young, in love, and set to start our lives together. In January of 2012, we went away on a trip to Hamilton Island for my mother’s birthday. Only 17, I was right,i would be  a mom. I was, in fact, pregnant.

Unbelievable in my eyes, i though it was a false negtive. How am I going to tell Chayd? He looked at the stick, looked at me, and said, ‘It’s probably a false negative. Don’t worry, it’ll be fine.’ I told him we needed to go to the doctor to get a test to confirm the pregnancy. Right then and there, we went to the doctors.  The doctor  confirmed postive  with stick test

We both were in shock still and didn’t really know what to do from there. Our pregnancy was textbook, and Chayd had managed to land a full-time job, while I was working part-time.

The night of August 27, 2012, when I was 35 weeks pregnant. My water broke prematurely and just like that, we were off to the hospital to give birth. My parents and brother came up with us, and I was so grateful to have their support. 8 hours later at 7:52 a.m., our baby girl, Arliyah, was born at just 4.9 pounds.

’ I held her in my arms, looking at her incredible locks of white hair. I thought to myself, ‘She’s just like her daddy.’ Chayd and I had super blonde hair as young kids so it wasn’t a shock for me to see how white Arliyah’s hair was. She needed to take care of the NICU.

One morning, I went around 5 a.m. by myself to be there for her morning feed. She was doing really well, despite being so small. One of the nurses came in said to me ‘I think your baby may be ᴀʟʙɪɴᴏ. We want to put a cover above her cot, as we think the lights are hurting her eyes.’ i was shock

I didn’t really think too much into it. I was mentally and physically exhausted. I went home that night and told my parents and Chayd what the nurse had said about Arliyah. Right away, they all went into overdrive googling. I remember crying and yelling at them to stop because my baby was fine. There was nothing wrong with her and I didn’t want to hear about this ᴀʟʙɪɴɪsᴍ because she didn’t ʜᴀᴠᴇ ɪᴛ.

The first 12 months were a whirlwind.You have to find a way to accept it and deal with the comments.’ He was right. I did have to find a way to cope. I soon realized my way of coping was holding her close to me.  Life moved pretty quickly with all the appointments and therapies Arliyah had.  She was still classified as legally ʙʟɪɴᴅ but she could see enough to get around pretty well.

When Arliyah was 18 months old, Chayd and I fell pregnant with our second child. All throughout the pregnancy, I knew he wasn’t going to have ᴀʟʙɪɴɪsᴍ. I know it sounds weird but I just had this strong feeling, and I was right. Our son was born on August 14, 2014, weighing 7.25 pounds.  Our wedding that year in May, we moved into our very first home at 19 years old as a family of four, bringing Reagan home a couple of days after he was born.

Soon enough, we were pregnant with our third child. Because Chayd and I carried the gene for ᴀʟʙɪɴɪsᴍ, any child we had together would always have a 25% chance of having ᴀʟʙɪɴɪsᴍ.  Throughout the pregnancy, I knew the baby would have ᴀʟʙɪɴɪsᴍ. Mackenzie was born on September 10, 2016, weighing 7.75 pounds.

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