February 4, 2023

Baby Wears Helmet 23 Hours A Day In Hope Of A Normal Life Behind His Rare ᴅɪsᴇᴀsᴇ

Baby Wears Helmet 23 Hours A Day In Hope Of A Normal Life Behind His Rare ᴅɪsᴇᴀsᴇ

When he was two months old,  David and Eva noticed something was wrong with their baby son Sebby. The parents saw that Sebby’s head was Fʟᴀᴛᴛᴇɴᴇᴅ ᴀᴛ ᴛʜᴇ ʙᴀᴄᴋ on one side, causing his Fᴏʀᴇʜᴇᴀᴅ ᴛᴏ ᴍᴏᴠᴇ Fᴏʀᴡᴀʀᴅ ᴀɴᴅ ʜɪs ᴇᴀʀs ᴛᴏ ʙᴇ ᴜɴᴀʟɪɢɴᴇᴅ.

 Two-month-old Sebby was soon ᴅɪᴀɢɴᴏsᴇᴅ ᴡɪᴛʜ sᴇᴠᴇʀᴇ ᴅᴇFᴏʀᴍᴀᴛɪᴏɴᴀʟ ᴘʟᴀɢɪᴏᴄᴇᴘʜᴀʟʏ – also known as Fʟᴀᴛ ʜᴇᴀᴅ sʏɴᴅʀᴏᴍᴇ – ᴀ ᴄᴏɴᴅɪᴛɪᴏɴ ᴛʜᴀᴛ ᴀFFᴇᴄᴛs around one in five babies. It’s not typically a cause for concern, as it doesn’t have any effect on the ʙʀᴀɪɴ, and the head shape and will often improve by itself over time.

However, as Sebby got older his ᴄᴏɴᴅɪᴛɪᴏɴ became more visible and David and Eva started to worry about the psychological effects it might have on their son in later life. As a result, the family sought ᴘʀɪᴠᴀᴛᴇ ᴛʀᴇᴀᴛᴍᴇɴᴛ and an ɪɴɪᴛɪᴀʟ ᴀssᴇssᴍᴇɴᴛ showed Sebby’s ᴄᴏɴᴅɪᴛɪᴏɴ to be in the ‘red zone’, meaning his ᴄᴏɴᴅɪᴛɪᴏɴ is fairly severe.

The baby was then given a helmet to wear 23 hours a day – a ᴛʀᴇᴀᴛᴍᴇɴᴛ that costs around £2,500 and can take two to five months to work. Ideally, it needs to be on full-time before the age of nine months – when the sᴋᴜʟʟ ʙᴇᴄᴏᴍᴇs sᴛʀᴏɴɢᴇʀ ᴀɴᴅ ᴍᴏʀᴇ ᴅɪFFɪᴄᴜʟᴛ ᴛᴏ ᴍᴏᴜʟᴅ. The family know that the helmet might not fully resolve the problem, but they hope it will be a big improvement.

David, 38, said: ‘We’re responsible parents and don’t feel that the right thing is to “wait and see” as we already know in our case. Yes, it will improve by a bit but still remains in the red zone – which is not reversible and stays visible for the rest of our life. That could have a ʜᴜɢᴇ ᴘsʏᴄʜᴏʟᴏɢɪᴄᴀʟ ɪᴍᴘᴀᴄᴛ ᴏɴ ǫᴜᴀʟɪᴛʏ of the life.’

Sebby, now seven months, has Fᴜʟʟʏ ᴇᴍʙʀᴀᴄᴇᴅ his new look – although has started to be more aware of it. ‘He has quite long hair at the moment so sometimes it can get quite sweaty and we have to remove it a lot, but he wears it most of the day,’ David adds. Every day is a different day but we obviously have to remove it when he is having a bath and when his hair is drying out. At the beginning he was completely okay but as he is growing and, at nearly seven months old, he is just more aware of his surroundings and more aware of the helmet.”


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